How Do I Apply?

SMA Support Inc.’s Grant-making/Program Dispersion Program:

SMA Support Inc. is dedicated to providing information and support in any manner needed to any and all families affected by the genetic disorder Spinal Muscular Atrophy (SMA). Such support consists of medical equipment, funeral expenses, medical supplies, flight costs to required appointments, communication and educational equipment, equipment to maintain quality of life, live and internet support, and other forms of information as well as support not covered by insurance that such families may need.

Families may apply for grants/funding by contacting Laura Stants with a filled-out application by e-mail at, or by mail to:

SMA Support, Inc.
P.O. Box 6301
Kokomo, IN 46904

**Please fill out this Application Form after reviewing the rules/policies below.**


  1. In determining applicability for dispersion of funds or equipment, SMA Support does not discriminate on basis of age, race, religion or sex.

  2. The grant program and equipment pool are open to families world-wide.

  3. Families must have had their equipment/services request denied by insurance prior to applying at SMA Support.  We reserve the right to request a copy of the denial.

  4. At this time SMA Support may limit funding to one request per family per year.

  5. Requests will be evaluated on a first-come, first-serve basis.

  6. Requests must come from the family themselves, not through a third party.

  7. In the event of multiple requests at the same time with limited funds, requests with the highest likelihood of improving quality or quantity of life in the individual will come first.

  8. In most cases, checks will not be sent to the family but directly to purchase whatever aid, supplies, services or equipment that is needed.

  9. Equipment that SMA Support purchases remains the property of SMA Support.  Families may use such equipment as long as they need or want.  When equipment is no longer needed, it is returned to SMA Support to be put in the “equipment pool” and made available to other families who may be in need of it in the future.  There are exceptions, which can be discussed on a case-by-case basis.

  10. Outgrown, malfunctioning, or unused SMA Support equipment is NOT to be passed on, sold, offered elsewhere or thrown away; it is to be returned to SMA Support as soon as possible.

  11. When applicable and capable, the family for whom equipment is being purchased should try to cover the shipping costs of the item.

  12. SMA Support does not provide financial support directly to families for general issues such as household, personal, or credit card bills.  SMA Support’s main focus is to take care of the critical equipment or services needs of individuals with SMA which will directly affect their health or quality of life.

  13. The amount of allowable services per family varies per year, depending on what is available and what has already been requested.  We can not provide items on the scale of accessible vans at this time. However, when appropriate, we can help towards said items.

  14. Upon submission of their application, a family can typically expect to wait less than a week for a response.


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